Historic Reintroduction of Endometriosis CARE Act Marks Milestone in Fight Against Endometriosis
Washington, D.C. - May 23, 2024 - Yesterday, a historic moment unfolded at the U.S. Capitol as the Endometriosis CARE Act was reintroduced, signifying a huge step forward in addressing the challenges faced by individuals living with and impacted by endometriosis. Led by Congresswoman Nikema Williams and supported by a the Endometriosis Cacus including Rep. Jenniffer González-Colón, Rep. Lauren Underwood, and Rep. Alma Adams, this critical legislation aims to confront the urgent need for increased research funding dedicated to endometriosis.
Originally introduced to the House in 2022 by Illinois Rep. Lauren Underwood, the Endometriosis CARE Act initially called for Congress to invest $30 million annually in endometriosis research. Now, with the reintroduction, the Act proposes an unprecedented $250 million allocation over five years specifically for research aimed at improving treatment options, enhancing public education about endometriosis, disseminating information to healthcare providers, and focusing on endometriosis disparities.
During the press conference, Congresswoman Nikema WIlliams invited remarks from Kathryn Schubert from the Society of Women’s Health Research, Dr. Dan Martin from EndoFound, Lauren Kournegay from Endo Black Incorporated, and Endo What director Shannon Cohn underscored the urgent need for greater awareness, research, and access to care for the millions affected by endometriosis.
Lauren R. Kornegay, the Founder & Executive Director of Endo Black, Inc., expressed her support, stating, “Since being diagnosed with endometriosis at 20 years old in March 2011, I’ve faced many challenges and understand the struggles this condition entails. The Endo Black, Inc. community and I wholeheartedly support the reintroduction of the Endometriosis CARE Act of 2024. This vital legislation is a significant step forward in providing the necessary support for research, treatment, and increased awareness.”
The reintroduction of the Endometriosis CARE Act highlights a growing recognition of the urgency to address this often overlooked condition. With increased funding and renewed commitment from policymakers, advocates, and healthcare professionals, we are positioned to make significant strides in research, awareness, and access to care for those affected by endometriosis.
The energy from the day carried into the evening with the Endometriosis Caucus Reception, hosted by the Society of Women's Health Research, Endo What?, and Endo Black Incorporated. It was a chance for advocates, researchers, policymakers, and allies to come together, connect, and share ideas in a friendly and supportive atmosphere. Representatives Nikema Williams, along with NICHD Director Dr. Diana Bianchi, reiterated their support for advancing endometriosis research and raising public awareness. It was a wonderful opportunity for everyone involved to network and build friendships while working towards a common goal.
The Endometriosis CARE Act is endorsed by the Society for Women’s Health Research, the Endometriosis Foundation of America, Endo Black Inc., Endo What? The American College of Obstetricians and Gynecologists and the March of Dimes.
Visit link here for a one pager on the Endometriosis CARE Act, https://d12t4t5x3vyizu.cloudfront.net/nikemawilliams.house.gov/uploads/2024/05/Endometriosis-CARE-Act-of-2024-FINAL-1.pdf
Visit the link to view the entire press conference, which begins at the 4:25 mark, at www.facebook.com/events/1401133767954261.
For media inquiries, please contact:
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About
Endo Black, Incorporated is a Black-women-led nonprofit organization advocating for and educating Black women living with and impacted by endometriosis.. The organization was founded in 2019, incorporated in April 2020, but has been prevalent in the community since October 2015 when founder Lauren R. Kornegay created the ENDO Black platform through social media. In 2021, it was renamed to Endo Black Incorporated.